Snickers!

Finally back on track. I have found that any little shift in schedule (even though our schedule is weird) really affects him in a negative way 😞
The craving of the day is a snickers bar! For the past three days it has been a cheeseburger!
We are still diligently practicing swallowing water. He struggles some still but it's going down the right way. So that's a plus! Tastes awful to him he says. I'm sure his palate has changed!
His drain from his repaired bed sore came loose yesterday. First the balloon opened in Ricky's sleep and drain all over the bed .. Mess to clean up. Then he kept telling me his butt hurt. Felt like it was on fire he said, so I looked and the stitch holding the drain tube in was stretched out and pulling on his skin. So I clipped the suture. Well my bad because now the pump balloon is deflated and it's no longer draining.
Im not going to worry too much as everything comes out next week and should have come out this week. Just another mishap.
I got a seaweed/silver type medicine for Ricky's ankle. No more zinc as it's just a barrier.....
I feel much better about this working.
Oh and I've figured out this home health care is just a bunch of bull also. Just checking off their boxes until they can "discharge" him.  Smh.....
I need so much help with this system ....that I do not know. 😨
Any advice is welcome as I am stumped with all of this.
Once again THANK YOU so much for the donations that keep coming. We wouldn't have made it this far without you guys and we love you! Muah! XO