Empathy ~

We have now been home 11 weeks.
Complete lifestyle change. And even though it will get better from here, things are still permanently changed.
I can't look at the entire picture all at once as it's overwhelming. I have to take it day by day sometimes hour by hour.
I don't know what's next and sometimes I don't have the answer. But I have to keep going. I don't get sick days, hurt days, simply taking off for pleasure, all of that is gone. I've had to give up work for the time being in order to do this full time. And for now there is no break, not even for an hour. It's constant.
Everything I had in me was tested early on, so now I feel more confident with what I am doing. Now that Ricky has come so very far and needs very few medical things done to him, it's eased up some.
Still have hard nights where I am up all night and day.
Empathy
That's the key
My position is bad. I couldn't imagine being in his shoes.
What keeps me going........
We will get through this like we have everything else for the past 24 years we just need help from our friends and family with this kind of trauma. It's beyond anything one person can do.
People call me superwoman, a saint, an angel...... I'm none of those. This is what I am supposed to do. Ricky took care of me for 24 years and now it's time for me to take care of him.
It's difficult on both of us emotionally... A lot of late night talks.
There's grief as our entire lives have changed and some things we won't be able to do anymore. Hard to accept at times. Cannot dwell have to just keep going.
Staying positive and having a lot of support from family and friends is what has gotten us this far. Thank you everyone for all of your help. We appreciate you all!! xoxoxo

Never ceases to amaze me!

Wow ~ not sure where to start since my last post.
I could probably touch on each aspect of it and it would turn into a book.
Primary care physician appointment was awful. It wasn't transportations fault either. I've never had a four hour doctors visit where the doctor spent a total of about 20 minutes with me. And he has a spinal cord injury!! My doctor spends 30 minutes with me and I have an anxiety disorder not a SCI.
Not going to touch on all of the details and dwell, have to move on and get him in with my doctor so he can get the right care.
Second appt with his lung doctor went excellent! He really doesn't need to see her anymore but she's keeping us until we can get out of that awful Gainesville system. 🙏
She was also one of his doctors in the hospital and she knows him. Thankful for that.
Today he had occupational therapy and physical therapy. He exceeded each ones expectations. PT finally confirmed that his injury is incomplete as he has sensation below the waist. 👏🙏
Issue is the wheelchair now. Was ordered nine weeks ago said six weeks it would be here...... It's not here yet. Another long story.
We still have rough days and nights because he likes to stay awake and fight all of his meds in order to talk non stop for three or four days. Exhausting for me.
I told his lung doctor and she prescribed what worked on him in the hospital.
He's finally not fighting it. He has to have rest in order to heal. And as he says he's not one to rest. So this has been a tough process already. And it's just the beginning.
One positive thing he said after the last therapist left was "I'm excited about our new journey"
Made me smile 😊
Thank you again to everyone for all of your support. Speechless and there's not enough words to express my thanks to all of you! We love you ❤️❤️❤️❤️ xoxo