We have now been home 11 weeks.
Complete lifestyle change. And even though it will get better from here, things are still permanently changed.
I can't look at the entire picture all at once as it's overwhelming. I have to take it day by day sometimes hour by hour.
I don't know what's next and sometimes I don't have the answer. But I have to keep going. I don't get sick days, hurt days, simply taking off for pleasure, all of that is gone. I've had to give up work for the time being in order to do this full time. And for now there is no break, not even for an hour. It's constant.
Everything I had in me was tested early on, so now I feel more confident with what I am doing. Now that Ricky has come so very far and needs very few medical things done to him, it's eased up some.
Still have hard nights where I am up all night and day.
Empathy
That's the key
My position is bad. I couldn't imagine being in his shoes.
What keeps me going........
We will get through this like we have everything else for the past 24 years we just need help from our friends and family with this kind of trauma. It's beyond anything one person can do.
People call me superwoman, a saint, an angel...... I'm none of those. This is what I am supposed to do. Ricky took care of me for 24 years and now it's time for me to take care of him.
It's difficult on both of us emotionally... A lot of late night talks.
There's grief as our entire lives have changed and some things we won't be able to do anymore. Hard to accept at times. Cannot dwell have to just keep going.
Staying positive and having a lot of support from family and friends is what has gotten us this far. Thank you everyone for all of your help. We appreciate you all!! xoxoxo
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