Wow! What a weekend! Ricky had plenty of visitors this weekend. Including his daughter and new grandbaby Hatch!
Best baby ever. So chill! Love him to death already!
Thanks Mom for coming by and bringing more supplies and some soft food for Ricky to eat. That will help him a lot!
Special thanks to my moms neighbors Frank and Judy as their loving donations have helped immensely!
Thanks to my moms friend Lynda for contributing to our cause. Words can't express our appreciation.
Thanks to my brother for calling every month to inquire about my bills and take some of that load off of me 🙏
Thank you so much Brandi for guiding me through this process and for STILL helping me advocate for Ricky's medical care.
Also my Aunt Janis and Julee for the monetary support, support with supplies and of course emotional support! You guys have been great!
Thanks Debbie (with Premier) for your donation it will help me greatly! You're one of a kind!
Thanks Michelle for contacting the angels group and for all of the support I have received from them! And thank you for getting my grandbaby a gift. I so want to spoil this baby and I don't have the means or the way right now. Thanks to my mother for that also and all of the diapers you brought for Hatch! He will need them 😉😉
Thank you to everyone who has donated to his go fund me account so far! He will need additional medical supplies for a long while that insurance will not cover and this will help me pay for it.
Thank you Andrea and Robby for making the trip here so Ricky could meet his new grandson! What an awesomely memorable visit! (Thanks for the techy gadget for Ricky too! It will help him a lot down the road)
After having baby love all weekend and all of the outpouring of love from everyone, I'm overwhelmed with happiness for a change!
Still have to continue to fight for Ricky's care but this will help me survive and take care of Ricky until he's has gotten a lot better.
Ricky continues to improve daily and I see all of the baby steps he is making on his own I can't imagine what he could do with therapy!!! He would probably be walking by now he's so determined.
He just wants to get up out of bed. Now the hold up is his chair which has not been delivered.
He is off of bed rest so PT and OT should start coming out but kind of need his chair for sitting up purposes....smh @ this system I am dealing with. The frustration continues and I don't expect it to let up any time soon 😞
I really miss having a life but if I have to give it up for a few years to get Ricky back to full health then it is more than worth it!
I have my down days and my up days, as does he. If he can keep going so can I! Rolling with it as always but have my work cut out for me this week starting with a doctors appointment on Monday with his primary care physician. I so hope this goes well 🙏🙏. Especially with transport as I had to use the company that is not reliable to transport him this time. Love med port and wish they could take us everywhere. But they can't.... I just have to call and see if they "have a contract with the facility" before I can choose companies. Dis like using the one I'm using Monday just hope we don't get left there for four hours again. That was not fun.
Oh yeah I have a sitter for next week so no worries about that anymore! I can get some things done on the outside world thanks to my mom and nephews!
Some things pop up that are needed and unexpected like I need a bigger AC unit for the room we stay in, the one we have is too small and with this heat it just is not cutting it so I'll need to buy a new one soon. These donations will all be going to help Ricky's progress, keep him clean and comfortable, possibly keep me sane, and get him back to full health.
I have written some thank you cards, I have mailed some, and some I have yet to write but just know everyone they are coming as I greatly appreciate everyone's help because I cannot do this alone!!! 💜 xoxoxo
Ricky's donation page:
https://www.gofundme.com/2a4dvu4
Tuesday, June 28, 2016
Sunday, June 26, 2016
No sleep! 😱😱😱😱😱
Ugh two hours of sleep last night. I will be a zombie today...
Ricky's stubbornness kept us both awake all night.
I have no idea how someone fights sleep over medication. Beyond me but he does. Then it becomes an awful night of imaginary construction work and planning various things throughout the night. 😞
So up at 5:30am to feed him and give him meds and decided to knock out a few loads of laundry for the day too! Now I have to lay back down or I won't make it through the day! Love weekends....not!!!
This has to get better from here! I can't lose my hope or faith this early on.
So I will keep going and advocate for Ricky's health and quality of life as I have been doing.
Things will get better !!!! 🙏🙏🙏💜💜💜
Ricky's stubbornness kept us both awake all night.
I have no idea how someone fights sleep over medication. Beyond me but he does. Then it becomes an awful night of imaginary construction work and planning various things throughout the night. 😞
So up at 5:30am to feed him and give him meds and decided to knock out a few loads of laundry for the day too! Now I have to lay back down or I won't make it through the day! Love weekends....not!!!
This has to get better from here! I can't lose my hope or faith this early on.
So I will keep going and advocate for Ricky's health and quality of life as I have been doing.
Things will get better !!!! 🙏🙏🙏💜💜💜
Friday, June 24, 2016
Life can change in an instant! Cherish your loved ones ❤️❤️
My big heart and sixth sense are my nemesis right now. 💔
This is not only tearing me apart inside but it is still hard for me to accept. That my life is over. Done.
I never had kids so I don't know what this is like & it scares me to death.
I've been home for almost seven weeks and I haven't been out of a five mile radius since then.
I wasn't thinking of myself when this happened .. Who does?
Now it's sinking in. I really have no life now. Everything is centered around Ricky (for good reason) and I've slowly disappeared into the background.
I can be both. An introvert and an extrovert. But I like to choose. Not be told what to do. And at the moment I am being forced because I have no other choice.
You can't have friends because you can't keep up your end of the relationship. You can't go anywhere therefore no socializing at all.
I like privacy but didn't want to be a hermit....how I feel right now.
Plus the inevitable happened and I strained my back. Has to be from leaning over ... Normally how I hurt it... That's all we need.
We have no choice except for to roll with it. And that's what we do.
Oh! I desperately need someone to sit with Ricky for like an hour or two a week so I can get everything done in the "outside world"..... I don't need much time away and I wouldn't ever leave anyone with medical things to do on him. All you would have to do is talk to him if he's Chatty Cathy or he sleeps a lot so you can even take a nap.
Anyway let me know if anyone can help me out text me, email me or FB message me. Thanks in advance.
My list keeps getting longer 😱......
As always thanks everyone for the support and the donations. Both are much needed right now, & there aren't enough words to express our appreciation! 😍❤️❤️❤️❤️ xoxoxo
https://www.gofundme.com/2a4dvu4
To help follow the link above. And please feel free to share the link. I desperately need the help right now. 😘😘
Thank all of youuuuuuuuu!! 💜💜💜 xoxo
This is not only tearing me apart inside but it is still hard for me to accept. That my life is over. Done.
I never had kids so I don't know what this is like & it scares me to death.
I've been home for almost seven weeks and I haven't been out of a five mile radius since then.
I wasn't thinking of myself when this happened .. Who does?
Now it's sinking in. I really have no life now. Everything is centered around Ricky (for good reason) and I've slowly disappeared into the background.
I can be both. An introvert and an extrovert. But I like to choose. Not be told what to do. And at the moment I am being forced because I have no other choice.
You can't have friends because you can't keep up your end of the relationship. You can't go anywhere therefore no socializing at all.
I like privacy but didn't want to be a hermit....how I feel right now.
Plus the inevitable happened and I strained my back. Has to be from leaning over ... Normally how I hurt it... That's all we need.
We have no choice except for to roll with it. And that's what we do.
Oh! I desperately need someone to sit with Ricky for like an hour or two a week so I can get everything done in the "outside world"..... I don't need much time away and I wouldn't ever leave anyone with medical things to do on him. All you would have to do is talk to him if he's Chatty Cathy or he sleeps a lot so you can even take a nap.
Anyway let me know if anyone can help me out text me, email me or FB message me. Thanks in advance.
My list keeps getting longer 😱......
As always thanks everyone for the support and the donations. Both are much needed right now, & there aren't enough words to express our appreciation! 😍❤️❤️❤️❤️ xoxoxo
https://www.gofundme.com/2a4dvu4
To help follow the link above. And please feel free to share the link. I desperately need the help right now. 😘😘
Thank all of youuuuuuuuu!! 💜💜💜 xoxo
About Joseph White and the cause he's running for ❤️❤️
https://give.reeve.org/fundraise?fcid=666761
Click the above link to donate.
http://podiumms.com/pages/2016-team-podium-joe-white
About Joe ~ read about him at the above link.
Extremely proud step mom!! ❤️❤️❤️❤️😍😍😍😍
This is Ricky's son by the way 😊😊
Click the above link to donate.
http://podiumms.com/pages/2016-team-podium-joe-white
About Joe ~ read about him at the above link.
Extremely proud step mom!! ❤️❤️❤️❤️😍😍😍😍
This is Ricky's son by the way 😊😊
Thursday, June 23, 2016
Finally off of "bed rest" 😊😊😊
Great doctor visit today. Ricky saw the plastic surgeon once more in order to make sure his skin flap surgery had healed. We were both told we did excellent jobs! It's fully healed and they couldn't even tell where it was 👏👏
He's finally off of "bed rest" and I still do not have his chair. Great system ....smh....
Now he can get physical therapy and occupational therapy. Which he needs desperately!
He still amazes me daily with the "new" things I see him do. I refuse to lose hope. We just have a longgggg road ahead of us.
Now on to the primary care physician finally on Monday. Then the urologist, pulmanologist, and the doctor that performed his back and neck surgery.
You think someone that has to see that many doctors would still be in the hospital. Nope. Our system is backwards. It's a full time job scheduling appointments and transportation for him.
I think each aspect of this is made to be tough so people will just give up and that's just sad to me.
I don't quit. I'm not giving up. And I never will.
He deserves to have a chance at walking again, regardless of his age.
If there was no movement in his legs I would let that go but he moves!!
And he will just keep getting denied the therapy he needs because of Medicaid.
Each person I deal with I have to remind them that I didn't choose to be a part of this system. This was a horrible accident, don't treat me or Ricky like dirt.
Anyway as always we are more then doing our part with this and the system keeps failing us.
Now if I knew a senator or a congressman with some pull he would be in shepherds center right now.... But I don't so he isn't and that's really messed up.
Thanks everyone for all of the donations this has all been overwhelming in a number of different ways. I wouldn't have made it this far without all of you!! 💜 xoxoxo
https://www.gofundme.com/2a4dvu4
He's finally off of "bed rest" and I still do not have his chair. Great system ....smh....
Now he can get physical therapy and occupational therapy. Which he needs desperately!
He still amazes me daily with the "new" things I see him do. I refuse to lose hope. We just have a longgggg road ahead of us.
Now on to the primary care physician finally on Monday. Then the urologist, pulmanologist, and the doctor that performed his back and neck surgery.
You think someone that has to see that many doctors would still be in the hospital. Nope. Our system is backwards. It's a full time job scheduling appointments and transportation for him.
I think each aspect of this is made to be tough so people will just give up and that's just sad to me.
I don't quit. I'm not giving up. And I never will.
He deserves to have a chance at walking again, regardless of his age.
If there was no movement in his legs I would let that go but he moves!!
And he will just keep getting denied the therapy he needs because of Medicaid.
Each person I deal with I have to remind them that I didn't choose to be a part of this system. This was a horrible accident, don't treat me or Ricky like dirt.
Anyway as always we are more then doing our part with this and the system keeps failing us.
Now if I knew a senator or a congressman with some pull he would be in shepherds center right now.... But I don't so he isn't and that's really messed up.
Thanks everyone for all of the donations this has all been overwhelming in a number of different ways. I wouldn't have made it this far without all of you!! 💜 xoxoxo
https://www.gofundme.com/2a4dvu4
Friday, June 17, 2016
Thank You EVERYONE!!! 💜 xoxo
I can't believe another week has flown by 😱 we will be home six weeks tomorrow. Doesn't seem that long. Doesn't seem like I have accomplished much but I have to stay positive. I'm sure I got more done then I know.
Ricky had a four day and four night run this past week. Wore me out and finally wore himself out. I have no idea how you stay awake for that long but he did. Was not fun.
Ricky continues to impress me daily with his "moves" ~ he's so determined! He just wants to get up and walk.
One more trip to see the plastic surgeon at the wound care center next week and I hope he will be cleared and will be off of bed rest. That way therapy will start again, and his chair better be here by then also.
As you can imagine I go through every single emotion we have on a daily basis but I can't imagine what Ricky is going through so that keeps me going.
Special thanks to Matt Breda for helping me maintain my "country living" ;) and to Mindy and Bob Hardison, you support is greatly appreciated! Debbie with premier you were way to generous. 💜 love my premier family and thank you for thinking of us! 🙏 blessed to have people like you in my life! Thanks for doing my dishes for me Michelle! I was ready to throw them a away 😂😂
Thanks to Meredith Breda for putting me in touch with Brooke. & Thanks to Brooke with SS you made my issues disappear in a snap! Forever in your debt! So much help!
Thank you for my Texas family! You guys have been amazing!!! I love you guys most!! xoxo
Thanks to Brandi for your continued guidance and help navigating this mess of a system with me. I wouldn't have made it this far without you and Stephen! You help keep me sane!!
Thanks to Kim for sitting with me at the hospital last week while Ricky had tests performed. I know it wasn't out of your way but it was time out of your life and time is precious. I so appreciate yours. And all that you have done for us, not enough words.....
Thanks Jenn and Stephen for doing a fundraiser for Ricky for your birthdays instead of gifts! What a selfless act! Love you guys!! ❤️❤️
Thanks to my mother and my aunts who continue to support me in EVERY way they can!
And As always thanks to the rest of my family for sticking by me as this hasn't been easy in any sense.
Thanks to everyone who has donated supplies or funds to go toward supplies! I have found out this stuff goes quick! I'm forever grateful!
Thanks to everyone who continues to think of us and pray for us. Both are much needed.
Becoming a hermit was not part of my life plan.... I know it has to get better from here!
All I know to do is to keep going, all I've ever done is change as my situation did throughout life. I have to continue to do that. Idk what else to do.
Any advice is welcomed. Such a lonely job. Especially when all of this is unfamiliar to me.
There's no way we would have made it this far without the support of our family and friends! We love you guys!! xoxoxoxo
Ricky had a four day and four night run this past week. Wore me out and finally wore himself out. I have no idea how you stay awake for that long but he did. Was not fun.
Ricky continues to impress me daily with his "moves" ~ he's so determined! He just wants to get up and walk.
One more trip to see the plastic surgeon at the wound care center next week and I hope he will be cleared and will be off of bed rest. That way therapy will start again, and his chair better be here by then also.
As you can imagine I go through every single emotion we have on a daily basis but I can't imagine what Ricky is going through so that keeps me going.
Special thanks to Matt Breda for helping me maintain my "country living" ;) and to Mindy and Bob Hardison, you support is greatly appreciated! Debbie with premier you were way to generous. 💜 love my premier family and thank you for thinking of us! 🙏 blessed to have people like you in my life! Thanks for doing my dishes for me Michelle! I was ready to throw them a away 😂😂
Thanks to Meredith Breda for putting me in touch with Brooke. & Thanks to Brooke with SS you made my issues disappear in a snap! Forever in your debt! So much help!
Thank you for my Texas family! You guys have been amazing!!! I love you guys most!! xoxo
Thanks to Brandi for your continued guidance and help navigating this mess of a system with me. I wouldn't have made it this far without you and Stephen! You help keep me sane!!
Thanks to Kim for sitting with me at the hospital last week while Ricky had tests performed. I know it wasn't out of your way but it was time out of your life and time is precious. I so appreciate yours. And all that you have done for us, not enough words.....
Thanks Jenn and Stephen for doing a fundraiser for Ricky for your birthdays instead of gifts! What a selfless act! Love you guys!! ❤️❤️
Thanks to my mother and my aunts who continue to support me in EVERY way they can!
And As always thanks to the rest of my family for sticking by me as this hasn't been easy in any sense.
Thanks to everyone who has donated supplies or funds to go toward supplies! I have found out this stuff goes quick! I'm forever grateful!
Thanks to everyone who continues to think of us and pray for us. Both are much needed.
Becoming a hermit was not part of my life plan.... I know it has to get better from here!
All I know to do is to keep going, all I've ever done is change as my situation did throughout life. I have to continue to do that. Idk what else to do.
Any advice is welcomed. Such a lonely job. Especially when all of this is unfamiliar to me.
There's no way we would have made it this far without the support of our family and friends! We love you guys!! xoxoxoxo
Thursday, June 9, 2016
Busy busy busy....
Another trip to Athens Regional yesterday. His discharge doctor from NE GA medical center, refused to write his refills on his meds (two addictive ones that you have to be weaned off of) told me to call Ricky's primary care physician.
He has yet to see his primary doctor because that's the first appointment we missed because of transportation issues. When I called to reschedule they were sooo nice to me (not!) that they rescheduled him for the 20th of this month....smh....
I also suspected a UTI. And I was concerned about that drainage tube coming out. I tried so hard to get the doctor on call to remove the rest of Ricky's staples from his healing bedsore but he wanted the plastic surgeon to do it. Since Ricky was not septic and antibiotics could be prescribed he wasn't admitted. We got there at 6:30pm and arrived home 4:30am. My sister in law Kim was awesome enough to come and sit with me while Ricky had his tests done. (Thank you P! Not enough words to thank you for all you do!❤️)
They thought they were done and I said what about the urine? Oh you wanted that tested too. Ummmm yes please. 🙏 thank goodness I did because he's on antibiotics now. And back home with me.
FF to 12:30pm and we were on our way to the plastic surgeon in Gainesville to get the staples removed.
Ricky got an awesome report, everything was removed. We go back in two weeks hopefully for the last visit 🙏
While there I ran into a good friend of mine I used to work with that now works for the transportation company I use. It was so good to see you Brandon!!! I feel like I've had no contact with the outside world for so long it was so nice to see a good friend!! 💜
So I Succeeded in getting Ricky's meds refilled but did not succeed with getting him admitted which I had hoped would start the referral process over again.....no such luck.
So before I lawyer up I will be calling all of my state reps from top to bottom to see if they can help us.
If not then I will be forced to get a lawyer in order to continue to fight for Ricky's health and quality of life. I will have exhausted ALL of my resources.
Ricky's asleep with all of his meds in him, continuing to heal and gain strength daily. He still amazes me!! Someone has to give him a chance!!! He has way too much potential.
I hope that we have a restful night and he will be ready for speech therapy in the morning.
Thanks for the continued support and prayers from EVERYONE we appreciate all of you ❤️❤️ XOXO
He has yet to see his primary doctor because that's the first appointment we missed because of transportation issues. When I called to reschedule they were sooo nice to me (not!) that they rescheduled him for the 20th of this month....smh....
I also suspected a UTI. And I was concerned about that drainage tube coming out. I tried so hard to get the doctor on call to remove the rest of Ricky's staples from his healing bedsore but he wanted the plastic surgeon to do it. Since Ricky was not septic and antibiotics could be prescribed he wasn't admitted. We got there at 6:30pm and arrived home 4:30am. My sister in law Kim was awesome enough to come and sit with me while Ricky had his tests done. (Thank you P! Not enough words to thank you for all you do!❤️)
They thought they were done and I said what about the urine? Oh you wanted that tested too. Ummmm yes please. 🙏 thank goodness I did because he's on antibiotics now. And back home with me.
FF to 12:30pm and we were on our way to the plastic surgeon in Gainesville to get the staples removed.
Ricky got an awesome report, everything was removed. We go back in two weeks hopefully for the last visit 🙏
While there I ran into a good friend of mine I used to work with that now works for the transportation company I use. It was so good to see you Brandon!!! I feel like I've had no contact with the outside world for so long it was so nice to see a good friend!! 💜
So I Succeeded in getting Ricky's meds refilled but did not succeed with getting him admitted which I had hoped would start the referral process over again.....no such luck.
So before I lawyer up I will be calling all of my state reps from top to bottom to see if they can help us.
If not then I will be forced to get a lawyer in order to continue to fight for Ricky's health and quality of life. I will have exhausted ALL of my resources.
Ricky's asleep with all of his meds in him, continuing to heal and gain strength daily. He still amazes me!! Someone has to give him a chance!!! He has way too much potential.
I hope that we have a restful night and he will be ready for speech therapy in the morning.
Thanks for the continued support and prayers from EVERYONE we appreciate all of you ❤️❤️ XOXO
Monday, June 6, 2016
Picture of Ricky
A face to put with the name :) One of my favorite photos. Ricky and his granddaughter Reagan walking on the beach. XOXOXO
Sunday, June 5, 2016
Snickers!
Finally back on track. I have found that any little shift in schedule (even though our schedule is weird) really affects him in a negative way 😞
The craving of the day is a snickers bar! For the past three days it has been a cheeseburger!
We are still diligently practicing swallowing water. He struggles some still but it's going down the right way. So that's a plus! Tastes awful to him he says. I'm sure his palate has changed!
His drain from his repaired bed sore came loose yesterday. First the balloon opened in Ricky's sleep and drain all over the bed .. Mess to clean up. Then he kept telling me his butt hurt. Felt like it was on fire he said, so I looked and the stitch holding the drain tube in was stretched out and pulling on his skin. So I clipped the suture. Well my bad because now the pump balloon is deflated and it's no longer draining.
Im not going to worry too much as everything comes out next week and should have come out this week. Just another mishap.
I got a seaweed/silver type medicine for Ricky's ankle. No more zinc as it's just a barrier.....
I feel much better about this working.
Oh and I've figured out this home health care is just a bunch of bull also. Just checking off their boxes until they can "discharge" him. Smh.....
I need so much help with this system ....that I do not know. 😨
Any advice is welcome as I am stumped with all of this.
Once again THANK YOU so much for the donations that keep coming. We wouldn't have made it this far without you guys and we love you! Muah! XO
The craving of the day is a snickers bar! For the past three days it has been a cheeseburger!
We are still diligently practicing swallowing water. He struggles some still but it's going down the right way. So that's a plus! Tastes awful to him he says. I'm sure his palate has changed!
His drain from his repaired bed sore came loose yesterday. First the balloon opened in Ricky's sleep and drain all over the bed .. Mess to clean up. Then he kept telling me his butt hurt. Felt like it was on fire he said, so I looked and the stitch holding the drain tube in was stretched out and pulling on his skin. So I clipped the suture. Well my bad because now the pump balloon is deflated and it's no longer draining.
Im not going to worry too much as everything comes out next week and should have come out this week. Just another mishap.
I got a seaweed/silver type medicine for Ricky's ankle. No more zinc as it's just a barrier.....
I feel much better about this working.
Oh and I've figured out this home health care is just a bunch of bull also. Just checking off their boxes until they can "discharge" him. Smh.....
I need so much help with this system ....that I do not know. 😨
Any advice is welcome as I am stumped with all of this.
Once again THANK YOU so much for the donations that keep coming. We wouldn't have made it this far without you guys and we love you! Muah! XO
Thursday, June 2, 2016
Inspiration!!!
Speech therapist just left. They come out twice a week to work with him in his cognitive function (?? It's all there)
All of the tools they bring are too easy for him. Not even a challenge. I practice on my own with him and make it a challenge. It's not hard to do, kind of common sense. She asked why he was doing so well. Because we practice. What do you think we do 24 hours a day here? Just sit here and do nothing? Psssstttt we would both be in the asylum for insane people if we did that. Nooooooo I have all kind of things we do throughout the day that's different kinds of therapy. I just incorporate it into our daily activities. I thought that's what you were supposed to do?
And I can already tell you it won't be four months before he can eat.
He was so pissed at me last night for not giving him a cheeseburger!! I was like woah, baby steps. I won't repeat the words that he said back to me but all of you that know us can insert them yourselves 😂
I pacified him with water as that's all he can have for now. He's getting good at it too. Drinks three small Dixie cups a day of water. No coughing 👍 and I can tell it's getting easier on him. Now he's not ready for a cheeseburger but I would think that he could be put on soft foods soon. No appointment scheduled yet for another swallowing test but I'll be asking for one next week. Need to step this up. He's motivated more than you can imagine!
He wants to get out of bed and simply walk to the door..... He wants to eat, go outside, ride in a car, play his drums, get eggs from his chickens and then some!!
He amazes me in some new way everyday!!!
If he's not an inspiration for you, he should be!! He's my inspiration!
XOXO
(And the donations keep coming! Thanks is not enough in this case. The amount of supplies I go through is incredible and every little bit helps! We so appreciate everyone!!!!)
All of the tools they bring are too easy for him. Not even a challenge. I practice on my own with him and make it a challenge. It's not hard to do, kind of common sense. She asked why he was doing so well. Because we practice. What do you think we do 24 hours a day here? Just sit here and do nothing? Psssstttt we would both be in the asylum for insane people if we did that. Nooooooo I have all kind of things we do throughout the day that's different kinds of therapy. I just incorporate it into our daily activities. I thought that's what you were supposed to do?
And I can already tell you it won't be four months before he can eat.
He was so pissed at me last night for not giving him a cheeseburger!! I was like woah, baby steps. I won't repeat the words that he said back to me but all of you that know us can insert them yourselves 😂
I pacified him with water as that's all he can have for now. He's getting good at it too. Drinks three small Dixie cups a day of water. No coughing 👍 and I can tell it's getting easier on him. Now he's not ready for a cheeseburger but I would think that he could be put on soft foods soon. No appointment scheduled yet for another swallowing test but I'll be asking for one next week. Need to step this up. He's motivated more than you can imagine!
He wants to get out of bed and simply walk to the door..... He wants to eat, go outside, ride in a car, play his drums, get eggs from his chickens and then some!!
He amazes me in some new way everyday!!!
If he's not an inspiration for you, he should be!! He's my inspiration!
XOXO
(And the donations keep coming! Thanks is not enough in this case. The amount of supplies I go through is incredible and every little bit helps! We so appreciate everyone!!!!)
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